The measure also summarizes how often patients reported that they were given written information about symptoms or health problems to watch for during their recovery. The Communication about Discharge measure summarizes how well the hospital staff communicated with patients about the help they would need at home after leaving the hospital. Also, yes my brother, was covid negative.Patients’ perspectives of care are an important part of patient safety. They’re kept separated from covid negative patients. I’m a nurse and aware of special precautions, and ppe required, when caring for covid patients. He will be missed more than words could ever say! Him being disabled and alone, the last week and sickest time of his life, will forever be burned in our minds! We hope he knows how hard we tried to grant his wishes! Also when we arrived I asked where all the covid patients were. We also thank the doctors that truly tried to help get to the bottom of why he was in organ failure. Why was it okay that we were allowed the last hour and a half of his life? The pandemic, and covid hadn’t disappeared! We strongly feel this is discrimination against the disabled! His last wish if he had one would’ve been for my mom to be there from the beginning to the end, and he was robbed of that! The administration has absolutely no compassion whatsoever! We do wish to thank the nurses, and aides, for the care you provided him, and any comfort you gave him. It rips our hearts to shreds knowing he spent the sickest week of his life, alone. Unfortunately, he was too sick at this point, to probably even know we were there. My mother and I were finally allowed to come be by his side, while he took his last breaths. He ended up passing away yesterday, Monday. He wasn’t a pediatric patient but he was disabled. Most hospitals allow a pediatric patient one parent at bedside. My brother continued to ask when she was coming, until he was no longer able because he was intubated in critical, but stable condition. They wouldn’t allow her at his bedside, unless we chose to make him comfort care. We called nursing supervisors, administration, asked every nurse, and doctor that we spoke with. When he left Cortland by ambulance the night of he said to our mother, “I want you there, you better do whatever you can to get there!” My mother and I, tried numerous times to atleast have one of us by his side. His fears were always eased having my mother at his side. He never liked hospitals, or doctor visits. As you can imagine, he had many, many surgeries, and doctor visits throughout his life. She was always there for him through everything in his life. My mom was his power of attorney, health care proxy, and most importantly his biggest supporter. My brother was a 41 year old man that was born disabled, with Spina Bifida. I’m a nurse, and well aware of the pandemic, and of covid, however, I also know that rules can be bent for certain circumstances. Myself, and my family members, are highly disgusted with the administration here. My brother was transported here from Guthrie Cortland on Monday.
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